Family Support

In Forest Hill, MD, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals living with Prader-Willi syndrome and their families. Our Family Support team stands ready to provide vital, accurate information and compassionate assistance right from the moment of diagnosis. We offer a comprehensive range of services, including personalized parent mentoring, nutritional education, meal planning guidance, and behavior management support. Additionally, we assist families in navigating the complex application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking support, we invite you to reach out to your local PWSA chapter through our online chapter locator or to connect via email to join our Facebook Support Groups, ensuring you never face this journey alone.