Family Support

Located in East Falmouth, MA, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals with Prader-Willi syndrome and their families. Our Family Support team is a trusted resource, providing essential information and guidance during crucial moments following a diagnosis. We offer a range of services, including parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we assist families navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking assistance can easily connect with their local PWSA chapter through our online locator or join one of our supportive Facebook groups for communal encouragement and information sharing.