Family Support

At the Prader-Willi Syndrome Association (PWSA) in Amherst, MA, we are dedicated to supporting individuals diagnosed with Prader-Willi syndrome, their families, and care providers through each step of their journey. Our Family Support team is a trusted resource, offering accurate information and comprehensive assistance right from the moment of diagnosis. We are committed to empowering families with essential services, including parent mentoring, nutritional education, behavior management support, and guidance with Medicaid applications, insurance appeals, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking support, we encourage reaching out through our local PWSA chapter or joining our Facebook Support Groups for a sense of community and shared understanding.