Family Support

Located in Valley Center, KS, the Prader-Willi Syndrome Association (PWSA) offers dedicated support for individuals with Prader-Willi syndrome, their families, and caregivers. At PWSA, we understand the challenges faced during a diagnosis, which is why our Family Support team is committed to providing essential resources tailored to your needs. Our services include accurate information and parent mentoring, nutritional education and meal planning, behavior management support, and assistance with navigating Medicaid, insurance claims, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our supportive community, families can locate their nearest PWSA chapter through our online chapter locator or join one of our Facebook Support Groups for ongoing assistance and connection.