Family Support

Based in Scott City, KS, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families through essential support and resources. Our Family Support team is committed to providing accurate information and comprehensive assistance right at the moment of diagnosis. We offer a range of services including parent mentoring, nutritional education and meal planning, behavior management guidance, and support in navigating the application and appeal processes for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking help, we encourage contacting the local PWSA chapter through our online locator or reaching out via email to join our supportive Facebook groups, where families can connect and share valuable resources.