Family Support

Family Support in Saint Marys, KS, is dedicated to providing essential assistance to individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our mission is to ensure that families receive accurate information and comprehensive support from the very moment of diagnosis. We offer a range of services, including vital information and mentorship for parents, nutritional education, meal planning, and behavior management support. Additionally, we assist with navigating application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can reach out to their local PWSA chapter through our online chapter locator or email us to join one of our active Facebook Support Groups.