Family Support

Located in Parsons, KS, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families through compassionate and comprehensive support. Our Family Support team offers crucial resources, including accurate information, personalized parent mentoring, nutritional education, meal planning, and behavior management strategies. We are committed to helping families navigate the complexities of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For assistance, families can easily connect with our local chapter or join our supportive Facebook groups for ongoing community engagement.