Family Support

In Newton, KS, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi Syndrome and their families through comprehensive family support services. Our experienced Family Support team offers crucial resources, including accurate information and practical guidance at the pivotal moment of diagnosis. We facilitate parent mentoring, provide nutritional education and meal planning, and assist families with behavior management strategies. Additionally, we are here to help navigate the complexities of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For families seeking assistance, we invite you to connect with your local PWSA chapter through our online chapter locator or reach out via email to join our supportive Facebook groups.