Family Support

Located in Marysville, KS, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is a vital resource at the moment of diagnosis, offering accurate information and comprehensive assistance tailored to each family's unique needs. We provide a range of services including parent mentoring, nutritional education and meal planning, behavior management support, and guidance through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can connect with local PWSA chapters using our online locator or reach out via email to join our supportive Facebook groups, ensuring they are never alone on this journey.