Family Support

Located in Manhattan, KS, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is committed to guiding families with accurate information and comprehensive resources, especially during the challenging moments of a diagnosis. We offer a variety of services, including parent mentoring, nutritional education and meal planning, behavior management assistance, and help navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking support, we encourage reaching out through our online chapter locator or joining one of our Facebook Support Groups for connection and guidance.