Family Support

Based in Lyons, KS, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering essential support and resources to individuals diagnosed with Prader-Willi syndrome, along with their families and caregiving teams. Our Family Support program is a lifeline during the critical moments following a diagnosis, providing families with vital information, compassionate guidance, and a network of parent mentors. We equip families with nutritional education and meal planning strategies, behavior management support, and assistance navigating the complexities of Medicaid, insurance claims, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our support services or learn more, families can find their local PWSA chapter using our online locator or reach out via email to join our Facebook Support Groups. At PWSA, we are committed to fostering understanding and empowerment for every family impacted by Prader-Willi syndrome.