Family Support

Located in Lenexa, KS, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals with Prader-Willi syndrome and their families. Our Family Support team is committed to delivering accurate information and comprehensive resources at the critical moment of diagnosis. Through our program, we offer specialized services including parent mentoring, nutritional education, meal planning, and behavioral management support. Additionally, we assist families in navigating the complexities of Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking assistance, we welcome you to reach out via our local chapter locator or connect through our Facebook Support Groups, where compassionate help is just a message away.