Family Support

At the Prader-Willi Syndrome Association (PWSA) in Kansas City, KS, we are dedicated to enriching the lives of individuals with Prader-Willi syndrome, alongside their families and caregivers. Our Family Support program is designed to provide essential resources and compassionate guidance right from the moment of diagnosis. We offer a wealth of information, personalized parent mentoring, and support in areas such as nutritional education and meal planning. Our dedicated team also assists with behavior management strategies and navigates the challenges of applying for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our Family Support services, families can locate their local PWSA chapter or reach out via email to join one of our supportive online communities.