Family Support

Located in Hutchinson, KS, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Understanding the challenges that arise at the time of diagnosis, our Family Support team offers reliable information, personalized assistance, and comprehensive resources, including parent mentoring, nutritional education, meal planning, and behavior management guidance. We also facilitate help with Medicaid applications, insurance claims, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) processes. Families can connect with PWSA through our local chapters by utilizing the online chapter locator or by emailing us to join one of our Facebook Support Groups for continuous support and community engagement.