Family Support

Based in Ellsworth, KS, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to guide families through the complexities of this diagnosis, offering accurate information and comprehensive assistance tailored to their needs. We focus on empowering families with resources such as parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we aid families in navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can reach out through our online chapter locator or join one of our active Facebook Support Groups to connect with others facing similar challenges.