Family Support

In El Dorado, Kansas, the Prader-Willi Syndrome Association (PWSA) stands as a dedicated resource for individuals diagnosed with Prader-Willi syndrome, their families, and caregivers. Our Family Support team offers essential guidance and compassionate care from the moment of diagnosis, providing vital information and comprehensive resources designed to empower families. Our program includes parent mentoring, nutritional education, meal planning, and behavior management support, ensuring that families can navigate the complexities of care with confidence. We also assist with the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For more information on receiving support, families are encouraged to use our online chapter locator to connect with their local PWSA chapter or reach out via email to join our Facebook Support Groups.