Family Support

In Derby, Kansas, the Prader-Willi Syndrome Association (PWSA) stands as a beacon of hope and guidance for individuals affected by Prader-Willi syndrome, along with their families and caregivers. Our dedicated Family Support team is committed to providing reliable information and compassionate assistance during critical moments following a diagnosis. We offer a range of essential services, including detailed nutritional education, meal planning, behavioral management support, and mentorship to parents navigating the complexities of this journey. Additionally, we assist families in understanding and accessing vital resources such as Medicaid, insurance claims, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Together, we empower families with the knowledge and tools needed to thrive, and we invite those seeking support to connect with their local PWSA chapter or join one of our supportive Facebook groups.