Family Support

Located in Rochester, IN, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support for individuals diagnosed with Prader-Willi syndrome and their families. At PWSA, our Family Support team offers reliable information and comprehensive assistance right from the moment of diagnosis. We focus on empowering families through resources such as parent mentoring, nutritional education and meal planning, behavior management support, as well as guidance through Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) processes. We invite anyone in need of support to reach out to their local PWSA chapter via our online chapter locator or connect through our Facebook Support Groups for community engagement.