Family Support

At the Prader-Willi Syndrome Association (PWSA) in Princeton, IN, we are dedicated to empowering individuals diagnosed with Prader-Willi syndrome and offering unwavering support to their families and caregivers. Our Family Support team is here to provide clear and accurate resources right at the moment of diagnosis, guiding families through a journey that can be both challenging and complex. We offer a range of essential services, including information and support, parent mentoring, nutritional education and meal planning, behavior management assistance, and help navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to connect with our local PWSA chapter using our online locator or reach out via email to join one of our Facebook Support Groups for ongoing community engagement.