Family Support

Located in Osceola, IN, the Prader-Willi Syndrome Association (PWSA) offers crucial support for individuals diagnosed with Prader-Willi syndrome and their families. Committed to delivering accurate information and comprehensive care, our Family Support team stands ready to assist at the critical moment of diagnosis. We provide a range of essential services, including personalized parent mentoring, nutritional education, meal planning, behavior management, and guidance with navigation through application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can access this supportive network by reaching out through the local PWSA chapter using our online chapter locator, or by email to join one of our supportive Facebook groups, ensuring no family feels alone in their journey.