Family Support

Located in Lafayette, IN, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support and resources for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is committed to delivering accurate information and compassionate assistance right at the moment of diagnosis. We offer a variety of services including parent mentoring, nutritional education and meal planning, behavior management support, and guidance with the application and appeals processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our services, families can locate their local PWSA chapter online or reach out via email to join our supportive Facebook groups, ensuring no one has to navigate this journey alone.