Family Support

In Demotte, IN, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals with Prader-Willi syndrome and their families by providing essential support and resources. Our Family Support team is committed to offering reliable information and guidance during the crucial time following a diagnosis. PWSA's program includes personalized parent mentoring, nutritional education and meal planning, behavior management support, and assistance with navigating Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. We invite families to connect with our local chapter through the online chapter locator or reach out via email to join our supportive Facebook groups, ensuring that no one faces this journey alone.