Family Support

Located in Bluffton, IN, the Prader-Willi Syndrome Association (PWSA) is dedicated to uplifting individuals diagnosed with Prader-Willi syndrome and their families through vital and compassionate support services. Our Family Support team provides accurate information and personalized assistance right when it's needed most—at the time of diagnosis. We offer a range of services including parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we assist families with navigating the complexities of Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). If you're seeking support, we encourage you to reach out through our local PWSA chapter or connect with us via email to join one of our Facebook Support Groups. Together, we stand strong in fostering understanding and resilience within the Prader-Willi syndrome community.