Family Support

In New Lenox, IL, the Prader-Willi Syndrome Association (PWSA) stands as a dedicated ally for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team offers vital resources and compassionate care at pivotal moments, providing accurate information and comprehensive assistance right from the diagnosis. We facilitate essential support through parent mentoring, nutritional education, meal planning, and behavior management strategies. Additionally, we guide families through the intricate processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our support services, please use our online chapter locator or reach out via email to join one of our Facebook Support Groups, where community and understanding thrive.