Family Support

Located in Jacksonville, AL, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support for individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. Recognizing the challenges faced at the time of diagnosis, PWSA's Family Support team offers a wealth of resources including accurate information, parent mentoring, nutritional education, and behavior management support. We are committed to empowering families by assisting them with applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support can find local resources using our online chapter locator or can reach out via email to join our Facebook Support Groups for ongoing assistance and community connection.