Family Support

Based in Helena, AL, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals with Prader-Willi syndrome, alongside their families and caregivers. Our Family Support team offers a wealth of resources designed to guide families through the complexities of diagnosis and ongoing care. We provide accurate information, parent mentoring, nutritional education, meal planning, and behavior management assistance. Additionally, we help families navigate the intricate application and appeal processes for vital support services like Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking support, we encourage reaching out through our local chapter using the online chapter locator or connecting with us via email to join one of our Facebook Support Groups.