Family Support

Based in Togiak, AK, Family Support is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families by offering essential resources and a caring hand to guide them through challenging times. Our Family Support team provides timely, accurate information along with practical assistance tailored to each family's unique needs. We offer comprehensive services including parent mentoring, nutritional education and meal planning, behavior management support, and crucial help with navigating the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can connect with us for support through our local chapters, or by reaching out via email to join our active Facebook Support Groups, ensuring they never feel alone on this journey.