Family Support

Based in Savoonga, AK, Family Support is dedicated to assisting individuals and families affected by Prader-Willi Syndrome. Our compassionate team offers crucial resources and personalized support during the challenging times following a diagnosis. We empower families through accurate information, parent mentoring, and nutritional education tailored to individual needs. Additionally, we provide behavior management guidance and assist with navigating the complexities of Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can connect with us for support by locating their local chapter online or by reaching out to be included in our supportive Facebook groups.