Family Support

Located in Noorvik, AK, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team offers a wealth of resources, including reliable information specific to Prader-Willi syndrome, peer mentoring for parents, nutritional education, and tailored meal planning. We prioritize behavioral management support, assisting families in navigating the complexities of Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) application processes. Families can easily connect with local PWSA chapters through our online chapter locator or email us to join one of our supportive Facebook groups, ensuring that no one has to navigate this journey alone.