PNH Patient Travel Assistance Fund

The PNH Patient Travel Assistance Fund is dedicated to supporting individuals diagnosed with Paroxysmal Nocturnal Hemoglobinuria (PNH) by providing critical financial assistance for necessary travel to specialized care. Located in Iliamna, AK, we offer up to $800 per patient annually to help cover essential costs such as airfare, train tickets, ground transportation, lodging, meals, and co-pays for medical visits and tests not covered by insurance. We understand the challenges that come with managing a rare condition, which is why our program allows grantees to travel with a companion, ensuring you have the support you need while seeking specialized treatment or a second opinion from PNH experts. Our mission is to remove barriers to access so that every PNH patient can get the care they deserve, enabling them to focus on their health and well-being.