Family Support

Based in Gustavus, AK, the Prader-Willi Syndrome Association (PWSA) stands as a beacon of support for individuals diagnosed with Prader-Willi syndrome and their families. Our dedicated Family Support team is here to provide essential information, mentorship, and resources tailored to navigate the complexities of this diagnosis. We offer a range of services including nutritional education, meal planning, behavior management support, and assistance with Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can easily connect with us through our online chapter locator or by reaching out via email to become part of our supportive community through Facebook Support Groups, ensuring you are never alone on this journey.