PNH Patient Travel Assistance Fund

Located in Eagle River, AK, the PNH Patient Travel Assistance Fund is dedicated to supporting U.S. patients with Paroxysmal Nocturnal Hemoglobinuria (PNH) by offering essential financial assistance for travel to specialist consultations. Each patient can receive up to $800 annually to cover vital travel costs, ensuring they can access expert opinions from PNH specialists. Our program assists with airfare or train tickets, ground transportation—including buses and rental cars—lodge accommodations, meals, and even co-pays for medical visits or tests not covered by insurance. To enhance support, grantees are welcome to bring one companion on their journey, reinforcing our commitment to accessible and compassionate healthcare for those battling this rare condition.