Family Support

In Dillingham, AK, the Prader-Willi Syndrome Association (PWSA) stands as a vital resource for individuals living with Prader-Willi syndrome, alongside their families and caregivers. Our dedicated Family Support team is here to provide essential information and compassionate assistance right from the moment of diagnosis. We offer a range of services, including parent mentoring, nutritional education, meal planning, and behavior management guidance. Additionally, we help families navigate the complexities of applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking support, please connect with your local PWSA chapter through our online locator, or reach out via email to join one of our supportive Facebook groups.