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Suspecting dissociative disorder; how do I cope with it?

MarkEthos November 13th

Hello!

My name is Mark, and I'm a host of an undiagnosed polyfragmented fictive-heavy system.

We've been trying to find proper therapy for a good long while, but it's hard to do so when you're freshly unemployed with no way of being able to afford any type of help. So, I'm posting here.

If you're triggered by trauma discussion, specifically topics of abuse, I'm gonna try to hide it under a read more but it doesn't seem to have that option so I'll just add a horizontal break line.


We struggle to remember large chunks of our life, but from what we've been told it started as early as 6. Our father was chronically abusive, both physically and mentally, and never provided the comfort and stable connection often needed for kids that age, and we had to move away from my childhood home shortly after. Every 2-3 years we'd end up needing to move again as we were surrounded by narcissistic and abusive family members, and as a result of trauma our own mother was no help half the time as she was very emotionally volatile and occasionally took her anger out on us. Usually in the form of emotional manipulation and abuse, but we very vividly remember to this day moments where she would physically hurt us in drunken rages. She was an alcoholic almost our whole life, only recently stopping within the past 4 years.

The first thing we remember as far as symptoms go, was the presence of uncontrollable "thought" voices in our head. We assumed it was imaginary friends, but we also had pretty bad maladaptive daydreaming and would often imagine ourselves as fictional characters, despite them acting almost exactly like the host. Then came the memory issues, concentration issues, executive dysfunction... Eventually the symptoms regarding the voices and "pretending to look like/be fictional characters" became not as noticeable, despite persisting, and a few times we ran into discussions of DID and its symptoms and we related, but shoved it aside and refused to address it. We instead thought our concentration and memory issues were merely ADHD as our mother was diagnosed with that very problem.

April of this year, however, we got back into watching a Youtuber named Soren, whose channel is named DissociaDID. And we got into watching The Entropy System, and The Ring System. I noticed the symptoms were very much like mine, and began to question whether or not I was a part of a system. As a result, all the symptoms came flooding back in, alters seeming to appear left and right as though they were waiting for me to discover them again. Primarily fictives and other introjects, but there were plenty of "brain made" alters as well. Now we're struggling to figure out how to cope as the dissociation has gotten worse, and the other trauma symptoms have worsened as well, especially since I seemed to have fused with a former host that had my deadname. She was the "first", so to speak.


Basically, what I'm trying to convey, is that I'm wanting to ask how other systems have coped? How did you manage to get through it, and is EMDR worth a try? Should we try and dig deeper into our past and work through the trauma ourselves, or is it not worth it and should we just wait for therapy? And how do we let others know of the whole "system" thing without being accused of faking or being judged? How do we deal with our own feelings of denial and feeling like we're just roleplaying the whole thing? It's embarrassing, but we cannot for the life of us explain why. It just is.


Thank you for taking the time to read this, and thank you for any responses you may decide to send to me. We appreciate every single bit of it.

1
mytwistedsoul November 13th

@MarkEthos Hello and welcome! It's all sort of complicated isn't it? The thing to try and remember what works for one system, might not work for yours. Many of us have worked on our own to establish safety and stabilization. We work on communication and build trust within the system. Allowing everyone to have a space to speak and share helps. A journal can often help everyone to get to know each other. We have a journal that everyone is invited to write their name and ages and what their role is. It's basically an introduction for themselves.


 Finding a therapist can be hit and miss. Some therapists might not believe in DID and can actually cause more harm. Some parts can and will fight against therapy. They might cancel appointments and be threatening to therapists. There's often a reason why they act this way. A lot of people start to work on things themselves, but you have to be cautious and gentle. Patience is needed. Trying to force things can cause more problems. Communication is a good thing to start with, because they can make their needs known. 

In all honesty, I think everyone with DID has moments of denial. In some ways it feels almost impossible to believe. Some parts (we use parts because we do not like the word alters. but it's fine if your's are ok with it) can go dormant until something triggers them. Often they want to be heard, they may have trauma to work through too. Not all parts are traumatized but they might be. Each system is different. There's a wonderful channel on YouTube called The Ctad Clinic https://youtube.com/@thectadclinic?si=_KxDJpIQQ021MIyF that has been a great help in getting started and finding suggestions. There are also some good articles here that offer suggestions and there are weekly chats in the trauma room. It's a nice place to meet others with DID and ask questions. https://www.7cups.com/forum/trauma/General_2433/ScheduleDiscussionsoftheTraumaSubCommunity_302437/

With letting people know about DID. We are selective. We're cautious and very careful, especially when it comes to littles. People might take advantage of them and cause trouble within the system by manipulating littles. 

Chances are I've missed quite a few things but if you have any questions feel free to ask and I'll do my best to clarify. 😊