13 , and after a seizure i found out i have epilepsy
yesterday i had my first ambulatory eeg , and it feels dehumanizing.and i'm scared
@optimisticSpring841 Hi Spring. I hope you're doing okay. I'm so sorry to hear that you learned you have epilepsy. I can imagine that's really hard for you after finding this out. I know the EEG can be hard to work through, but many people have gone through similar experiences 💜 We have Listeners here available 24/7 if you would like to get some extra support. I have attached some resources below that you may find helpful! I'm thinking of you!
https://www.epilepsy.com/parents-and-caregivers/teens
https://www.efepa.org/living-with-epilepsy/young-adults/
https://kidshealth.org/en/teens/epilepsy.html
I have seizure risk- epilepsy- from cranitomy done bacterial meningitis of my brain. Access left temporal lobe. There are mini plates and screws. This was 9 years ago. I am seizure free. Never any LOC. Last 2 eegs- no epiletiform activity. I still continue to research epilepsy and keep learning
@optimisticSpring841
i got epilepsy to but have my whole life mine is from chromosome syndrome and intractable epilepsy because medicine doesn’t work good for me and never makes seizures completely go away but I am here if need some one that understands seizures ok