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RBD-like behavior after a seizure

sacrificerogue November 13th, 2016

So I had a grand mal seizure in August. No history of seizures or epilepsy. Still don't know what caused it. But they have me on medication so I haven't had any since. But since then I've started exhibiting REM sleep behavior disorder-like behavior. Kicking and choking my boyfriend in my sleep. I have absolutely no memory of doing this. No memory of any possible dreams that could be happening while doing this. I feel really bad and I dont want to keep hurting him. How do I stop this?

4
Belis November 14th, 2016

@sacrificerogue

I think that you should see your doctor ASAP. It can be another manifestation of epilepsy or side effect of your medication. it is not possible to tell without further tests. The sooner you consult a professional the better. In the meantime it may be safer for both of you not to share a bed.

lovingBanana5204 December 5th, 2016

@sacrificerogue I'm sorry that this all is happening to you, it sounds like it could be a frightening experience. I don't know much about seizures or RBD, so I don't think I can help you there. Have you talked to your doctor or a sleep specialist about this?

AndreaMendezLCSW January 25th, 2017

@sacrificerogue It must be scary to feel like you are not able to control your behavior while you are asleep. Ideally, I think we all like to think of sleep as a restorative thing that hopefully comes easily to us. How crummy that is not the experience you are getting. I definitely agree with the people that have mentioned the importance of talking to you prescriber and/or any other supervising medical professionals regarding the issues you are having. It is a good thing to be a strong advocate for yourself with any concerns that you have about your medical issues and/or regarding any potential side effects of medications that you might be having. I wanted to put my two cents in about your seizures - While I am definitely not a doctor, and can not give you medical advice, I do have a great deal of personal experience regarding supporting and advocating for a loved one with epilepsy. You may want to consider consulting a neurologist specifically if you have not already, and within the neurologist community, someone specificically with the added credential of "epileptologist." It took my loved one nine years of seizures and several nuerologists before the actual diagnosis of epilepsy was given and the reason for seizures was discovered. Anyway, I hope that your sleep improves soon and you find out the reason you are having these issues. Good luck with everything.