Rhupus!!!! Why me????
I recently got diagnosed with rhupus, previously I was a juvenile rhuematoid arthritis case otherwise. It's pretty rare, in the whole rheumatology department, I found no one. I'm rather the first case in the hospital I go to, so from knowing how I have rheumatoid arthritis to now knowing I also have lupus is pretty devastating for me. It is still so hard to digest.
What sucks most is no one in my family is able to digest it. Instead they are now gaslighting me that I am totally normal. I'm sadly becoming disabled thus can't do much, but sadly no one supports me, fearing they would be need to do stuff for me. Unless I pass out to be woken up in the emergency ward, no one really is with me. How to accept my decorating health when no one around me is supporting me and mostly calling me out as a big failure as if I wanted to have any of this suffering to even begin with.
@cosmicsummer9323 You're welcome to join us in Disability Support
I have a general idea of how difficult those illnesses can be. Unsupportive family is definitely making it more difficult too. Is there one family member who is open to learning more if you set aside a time to talk to them? Sometimes people are just very misguided, but get there eventually. Unfortunately I know some people will continue to be unsupportive.
I hope you're able to have them well controlled and find people around you who are supportive - whether or not they are family.
@cosmicsummer9323
Hi, I'm very sorry about your situation.
I don't usually comment much here, but I really hope you recover soon.
You are very strong for sharing about it here. Thank you for it.
I don't know much about health either, but I hope someone here can help you.
I wish you the best and I'm sorry you don't have much support from your family. I wish I could help you.
I send you a big and strong hug🫂😺 I know it's not easy to deal with any illness or problem and I really hope you recover and get good treatment. Have faith, whatever your beliefs, I hope you heal.
Good morning/afternoon/evening. I hope someone can help you soon. Take care a lot ❤️