My experience with chronic pain
So I’m not sure if I belong here since I don’t have a disability, and I’m sorry if I’m overstepping, but there was no other place to talk about chronic pain, and I need to talk about this. I used to have chronic neck pain, it was for many years of my childhood.
As long as I could remember, every few afternoons I would have intense pain in the back of my neck, like my spine was going to burst out of my skin. My family took me to many doctors in the hopes we could figure out what was going on. None of them knew what was happening, or knew any way to treat it. It didn’t help that I felt like I was gaslighting myself since it never happened in the doctors office. I lost count of how many doctors tried and failed to find anything wrong. Even with my description and how long it was going on they all told me my neck was fine until one doctor. He didn’t find anything, but he did try to help. He tried, and he succeeded. The pain that had plagued me most evenings was becoming more spaced out and more mild as time went on with his help. Then he died. The only doctor who helped me died.
But he’d done enough. I thought my pain was gone for good since it had been fading out and until recently I was so sure I was free. Then one day I felt it. It’s a very specific type of pain, different from any others I’ve had. It was mild and only for a few minutes but it was back. I felt like crying.
As a kid, I had never thought of my neck pain as something to cry about, it was just my life. I think I only realized I wasn’t ok with it after it was gone long enough to fear its return. I had also unconsciously attached all of my emotional pain surrounding it to violin, the dream I could never achieve given it made it worse. I tried talking about the violin and I couldn’t stop crying. I don’t cry about my pain.
So after all of this fighting, all of this pain, all of this helplessness, the pain was back if only for a short while. I still fear I’m not free. I still grieve I can’t play violin. I may have stopped being affected physically for the most part, but apparently this is something I’ll have to work past.
(sorry for dumping such a long and maybe hard to follow story. This needed to come out)