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A weird question

AmalieAnne November 30th, 2018

I am not sure how to ask this question but some advice or experience. I have a disability which to me is frustrating but it happened when I was 3 so it has kind of always been normal although frustrating. I also have dyslexia but does not bother me because in my mind I just keep going until I get something and I use weird ways. I just do that with everything. I also had or have been a**sed so this makes it more difficult I guess.

So the question - Mommy is really protective of me, like REALLY protective. At times she is 100%. We talk about it and to be honest I am 95% of the time really happy that she is like that. So I am not left alone like most 15 year olds (I have only been 15 for two days but still...) because something might happen, which it might plus I am scared if I was by myself of stuff like ghosts or fires. Some of my other family are like that as well while some are.. work with me, so granddad will give me a piggy back ride down the stairs which is fun. So.. I am not sure what my question is but how to I work around with this? So I guess I am asking people with disabilities how do I slowly get independent or something.. maybe I am asking is - I am not sure. It feels I could do a little bit more by myself but keep the protectiveness.

Not sure I am making any sense at all.

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AffyAvo December 1st, 2018

I don't think it's a weird question. Independence can be scary, especially when there's something different about us that can put as more at risk that the average person doesn't have.

I think it helps to take small steps, identify some things you would like to do that are a bit outside your comfort zone but don't require huge leaps. Have a plan in place - like someone you can call (and bring your cellphone) if things don't go according to your plan. Talk to your family about these things.

Sometmes health care professionals (doctors, nurses, counsellors, social workers, etc.) can help with these plans too.

3 replies
AmalieAnne OP December 4th, 2018

@AffyAvo We have decided on a small step which is swimming the long way by myself (although maybe with a float). I do not have a cellphone but it is more an emotional thing rather than pratical. I have a lot of support though, even have someone at school who is really nice and helps me, also helps when I get frustrated with things. I do talk to my therapist about things but I understand even though the secret things have not been secret for a while now.. it is still kind of difficult. I am not sure when things will be sorted in my head and then.. there are lots of things. I thought physiotherapy was difficult but that seems kind of easy now compared to some things now.

2 replies
AffyAvo December 4th, 2018

@AmalieAnne It sounds like that's a great goal to work towards, doing that until you're comfortable. Once achieved you can try something else smiley

1 reply
AmalieAnne OP December 5th, 2018

@AffyAvo smiley

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fancyPenguin97 December 1st, 2018

I agree about finding different things you can be independent in but always keep your phone with you. I am hemiplegic which means I'm paralyzed on one side of my body there are lots of things I struggle with but I still manage to be independent. Get a counselor, nurse, doctor, and there are social workers you can get to work with you through insurance if you have medicaid. They can help guide you. Hope this helped

1 reply
AmalieAnne OP December 4th, 2018

@fancyPenguin97 I have a therapist and she is really nice. I am a ETINA (European trapped in North Ameria) but in Candan so it is a socialists country and other things are paid for by mommy's school, that is one of the conditions she works there is they pay for anything health things if they need to be paid for. So I am very lucky and I have heard of medicaid which is a US thing but I have only lived in countries which will treat people for basically free.

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