POTS and Pain

@Bndonovan02 For pain, I like Dr. Gabor Mate, Eckhardt Tolle, God, and Teal Swan.

@Bndonovan02 have you taken tests to diagnose your problems? If not, how can you assume all that?

Please, try to treat one at a time, you can't so it all. Check for each and every disease you just mentioned. Or else you're gonna be nuts. Start out with the (two) major(s) one(s).

I'll pray for you, if you want.

Cheers.

I’m lucky enough to work in an internal medicine field, which is all about piecing together medical puzzles. That’s how I’ve been approaching this, as objective as possible when I’m in research mode (I’m very subjective when I’m in crying-in-my-nest mode). I’ve gone through the medical criteria checklists for each one and they have all been positive. I also have a binder of research (actual medical journals). Discussed it with my PCP and she agrees. Unfortunately, there aren’t definitive, medical tests for most of these. Diagnosis is made through criteria, symptoms, family history, and extensive Q&A with doctors. Most of the treatments for these are symptomatic, which is what we are doing until I can get in with the specialists and they can, hopefully, give more targeted treatment and recommendations. My sister and father are currently going through similar diagnostic steps for HSD/hEDS, which is genetic.

I will always accept any kind of help/well wishes/and luck out into the universe! Thank you!

@Bndonovan02

@Bndonovan02

I figured out your PCP's diagnosis were mostly done through Q&A, criteria, symptoms, family history, genetics etc. What I just got impressed with at first was the huge amount of diseases you've developed. Having been through lots of health issues in the recent years myself gave me, just a hair, insight into people's issues. Thanks God there coming to an end.

Some of my doctors are not as good as yours. You're well assisted, and that's great thing to hear. And frankly I don't quite trust them. Most of them could give out better treatments than the mainstream versions but simply don't. Or else: you get healthier, they get poorer. That's how most of them cope, unfortunately, medicine industry kinda thing etc...

Anyways, if I can be of some help, let me know. I'll be around.

God bless ya.

Cheers. 😊

I have decided that, if I don’t trust my doctors or I don’t feel they care, I kick them to the curb. I’ve already switched out my PCP when my first one wasn’t even interested in what my pain was like or how it made me feel. I can’t have that.

I had Covid in the beginning of the year, and then a few months later is when everything started to spiral. I’ve been hearing a lot online and through friends and coworkers that have noticed similar things after having Covid: what were minor or almost nothing issues, are now life altering. It’s interesting, not fun at all, but interesting. Thank you so much. 💜💜

@Bndonovan02

I'm not a doctor, not at all. I just dont buy their c...p anymore. I learned the hard way even though some issues, as you mentioned, are life altering, they don't give a damn about us. I just don't know if they're psychos or narcissists, whatever, but why would someone feed off a sickened, ill person? I just don't get it. Now it's my way or the highway.

My issues were mostly biomechanical, musculoskeletal. However, this doctor helped me out of it: whenever I needed MRI'S or other types of tests/exams, he just gave me the prescription in no time.

I've had several MRI'S, an extensive blood test, x-rays, 40-ish appointments within a single year, doctors from 4 different medical fields, and the only one who really helped me was my orthopedist. Everything I ask him for he promptly gave - and still give - out to me. My neurosurgeon helped me as well, but only once. My orthopedist's aware he's one in a million, but does not brag.

Also there are lots of them who are not skilled as they're supposed to be. That's for a fact. How can we be sure of? Virtually impossible. We're puppets on strings, I guess.

Cheers.

I hear you. My podiatrist has been very supportive of me looking into these diseases and even encouraged me to speak up with other doctors. My current PCP sounds a lot like your orthopedist. She did not hesitate to give me referrals for the specialists I’ll need. That was great.

@Bndonovan02

I also have hEDS and POTS + AuDHD, anxiety, & depression, and I can absolutely empathize with that you’re going through. I just visited Tennessee with my family a couple weeks ago, and I was really struggling to keep up with everyone. My mom and I stayed back at our own pace. My body hurt, my heart wouldn’t slow down, my body doesn’t sweat properly… it can be hard. Very hard. That overwhelming feeling of defeat… it’s mentally taxing. What I’m trying to do is practice gratefulness and radical acceptance. I’m grateful for my body because it hold my soul. I accept that I have hEDS and POTS and may need to take more breaks than the average person. I accept that it takes a little extra maintenance to keep me going, but I’m still grateful to be here. Have you ever tried these methods before? I find them very helpful.

Something I try to do is make sure I have my salt capsules with me at all times. It helps my POTS tremendously! I make my own by putting salt in empty capsules. The salt increases your blood volume which helps slow down your heart rate. It works better than any drug I’ve ever tried to help my POTS (that’s a whole other story…).

You’re not alone in this 😊 we can all support each other with these struggles.