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PixiLove31 October 7th, 2023

Hello, I am new and I struggle with a disability that is still considered rare, although more and more people are being diagnosed with it. I have been struggling and it has taken a new toll on my body. I often feel alone and don't really have people to talk to about it.

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Sunisshiningandsoareyou October 7th, 2023

Hiya @PixiLove31 lovely to meet you and so proud of you for reaching out for support. It can be quite difficult when we struggle to find an empathetic space for ourselves but you deserve a compassionate space to share and talk about your feelings and experiences as well and I hope 7 cups becomes that space for you. 💛

Tinywhisper11 October 7th, 2023

@PixiLove31 hi welcome to cups ❤ I'm lola ❤ I'm also disabled and understands, feeling alone in it. But you came to the right place here on cups ❤❤ huggs you

MartianGirl347 October 7th, 2023

@PixiLove31

Hi! And welcome! I also deal with a disability called Ehlers-Danlos Syndrome that causes POTS. It can be tough dealing with a disability, especially when it doesn’t match your personality and when no one really gets how much it can affect you on a daily basis.

I’m sure you’ll find a good support system on 7cups that can relate to your story 😊 it’s nice to meet you, Pixi!

2 replies
norabell October 8th, 2023

@MartianGirl347

hi. It’s nice to hear someone else dealing with Eds and pots. I was just diagnosed a month ago, and I’m really struggling rn

1 reply
MartianGirl347 October 9th, 2023

@norabell

It’s nice to meet you, fellow Zebra!

I agree 😊 it’s definitely better when you don’t feel so alone in the struggle. 

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slowdecline48 October 7th, 2023

Greetings @PixiLove31, & welcome. I definitely relate to having a rare condition...it can be lonely indeed. If you hang around here long enough, you might meet someone else with a similar condition, or even the same one.