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Getting worse and worse both physically and mentally

FicaR94 August 8th, 2020

I feel horrible physically and very depressed since deterioration, here's my situation in short because I can't write longer due to extreme brain fog.

I have severe ME. I'm not entirely on my own as I have great support in these groups and a few ME people with whom I chat, but it's close to it and close to impossible to carry on, because in real life I'm the only one who is researching this illness and ways to get better, my closest family and friends are trying to support and be kind, but they have many (health) problems themselves or don't understand English to research, and I started with that mostly recently, when I got severe, so I can do very limited amounts of it plus my state isn't improving at all, I have some better days, and I don't even overdo activities on them anymore, and still I crash hard, I can even say my state is deteriorating; maybe I have something additional to ME, but I can't do many tests where I live, all the doctors (except my new therapist) are uninterested in ME, and I don't have money to go elsewhere for those tests and new doctors. I also wanted to try with keto-paleo diet as the last option - as dr Myhill advised, but I feel unready for it because of such a low variety of allowed foods, especially where I live (and food is very important to me, as only it and music bring me joy on my bad days, which are the majority lately), and also because I would feel even worse while in ketosis, but I'm already barely holding on. And I got very depressed, so much that today I couldn't even listen to music or write to anyone because depressed mood further weakened my disability. So what do you suggest?

1
talkswithariba September 9th, 2020

@FicaR94

hello, thank you for opening up. I can only imagine what you're going through. I'm sorry to hear about your illness. Please know that we're all here for you and support you. We would love to see you better and recovered someday. In addition, please know that as listeners, we're not allowed to give advice, but we're here to support you. I'm glad you're meeting a therapist, and researching on ME yourself as well. I hope it gets better soon!