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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Monroe, WI US
Based in Monroe, WI, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team offers a wealth of resources designed to help during the critical moments following a diagnosis, including accurate information, parent mentoring, and nutritional education tailored to meet unique needs. We also provide guidance in behavior management and assistance with navigating application processes for Medicaid, insurance claims, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking support, the PWSA encourages families to connect with their local chapter via the online chapter locator or reach out by email to join one of our active Facebook Support Groups, fostering a caring community where families can find understanding and resources.

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