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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
South Jordan, UT US
At the Prader-Willi Syndrome Association (PWSA) in South Jordan, UT, we are dedicated to empowering individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers, by providing essential information and comprehensive support from the moment of diagnosis. Our Family Support team offers a range of services, including parent mentoring, nutritional education, meal planning, and behavior management support, ensuring families have the resources they need to navigate the challenges of this condition. Additionally, we assist families with the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our support, families are encouraged to reach out through our local chapter using the online chapter locator or connect with us via email to join one of our Facebook Support Groups.

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