Family Support

Based in Del Rio, TX, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing compassionate support to individuals with Prader-Willi syndrome and their families. Our Family Support team is a vital resource, offering accurate information and comprehensive assistance right from the moment of diagnosis. We offer personalized resources including parent mentoring, nutritional education, meal planning, and behavior management strategies to empower families. Additionally, we guide families through the complex processes of applying for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to connect with our local chapter through our online chapter locator or reach out via email to join our supportive Facebook groups, where they can find community and expert advice tailored to their needs.