Family Support

Based in Pottsville, PA, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is committed to offering accurate information and compassionate assistance during the critical time of diagnosis. We provide vital resources such as parent mentoring, nutritional education, meal planning, and behavior management support, as well as guidance through Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) processes. We invite families to reach out through our local chapter locator or email us to connect with our supportive community via Facebook groups.