Family Support

Based in Camp Hill, PA, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals with Prader-Willi syndrome and their families through every stage of their journey. Our Family Support team is committed to providing accurate information and a wealth of resources tailored to your needs from the moment of diagnosis. Our comprehensive program includes parent mentoring, nutritional education and meal planning, and behavior management support, ensuring families have the tools necessary to navigate challenges. Additionally, we assist with Medicaid applications, insurance coverage, and benefits like Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). To access our support, families can reach out via the local chapter locator or connect with us through our Facebook Support Groups.