Family Support

Located in Madill, OK, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. Our Family Support team is here to ensure that families have access to accurate information and comprehensive resources right from the moment of diagnosis. We offer a variety of services, including parent mentoring, nutritional education, and tailored meal planning to promote healthy lifestyles. Additionally, we provide behavior management support and guidance through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For personalized assistance, families can connect with our local PWSA chapter or reach out to us via email to join one of our supportive Facebook groups.