Family Support

Located in Bethany, OK, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering vital support to individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is here to provide accurate information and compassionate guidance right from the moment of diagnosis. We offer a range of services including parent mentoring, nutritional education, meal planning, and behavior management strategies. Additionally, we assist families with the often complex application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our support services, families can easily locate their local PWSA chapter online or reach out to us via email to join one of our Facebook Support Groups.