Family Support

Located in Dover, NJ, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals with Prader-Willi syndrome, their families, and caregivers. Our Family Support team offers accurate, comprehensive information at crucial moments, ensuring families have the resources they need right from the time of diagnosis. We provide a range of services, including parent mentoring, nutritional education and meal planning, behavior management support, and assistance with navigating Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) application processes. To access our support, families can connect with their local PWSA chapter through our online chapter locator or join one of our Facebook Support Groups by contacting us via email.